The European MEN Alliance (EMENA) is an umbrella organisation formed in 2013 at a meeting in Munich, Germany. The Alliance consists of equal representation from European patient groups who provide information and support services to patients with multiple endocrine neoplasia (MEN types 1, 2, 3 and 4) and from the expert multidisciplinary medical professionals who care for them. On Monday 30th May, 2016, EMENA was formally established as a German non-profit organisation at a meeting in Munich (pictured below). The following Executive Committee roles were agreed:
- Petra Brügmann (Netzwerk für Hypophysen – und Nebennierenerkrankungen, Germany) – President
- Jo Grey (AMEND, UK) – Vice President
- Carla Pietermann (MEN Belangengroep, The Netherlands) – Secretary
- Karl Philipp Drewitz (Germany) – Treasurer
Etablishment Assembly 30/05/2016 in Munich
Prof. Dr. Ludwig Schaaf, Volker Reiss, Prof. Dr. Josef Pichl, Dr. Manfred Reiss, Petra Brügmann, Jo Grey, Martina Sanmarco, Carla Pieterman, Karl-Philipp Drewitz, Helga Schmelzer, Christiane Fleischmann ( from left to right)
Mission:
To improve the diagnosis, care and lives of patients affected by MEN
Aims & Objectives:
- to encourage and assist the foundation and development of new patient groups
- to establish a minimum set of standard guidelines regarding patient care
- to provide, through member organisations, information medically approved by advisors and moral support to those affected by MEN, and their relatives
- to work closely with medical professionals to promote awareness and understanding of MEN
- to encourage global scientific collaboration to enable work-up of long-term morbidity and mortality
Current Membership:
| FRANCE |  |
Dr Pierre Goudet |
| GERMANY | 
für Hypophysen – und Nebennierenerkrankungen e. V. |
Prof. Ludwig Schaaf |
| ITALY |  |
Prof. Maria-Luisa Brandi
Prof. Francesco Tonelli |
| NETHERLANDS |  |
Prof.Dr. Gerlof Valk
Carla Pieterman |
| UNITED KINGDOM |  |
Dr Paul Newey
Prof. Rajesh Thakker |
